Cystic Fibrosis is something that we often hear about, but don’t understand the impact it has on an individual and their families.
One in every 2500 babies born will be diagnosed with this disease. The average life of an individual with CF is that of 30years and there is no cure. CF affects many organs within the body but specifically the lungs and pancreas. The ineffective movement of salt between cells creates a thick sticky mucous that results in blockages of these organs. The repetitive infections of the lungs lead to irreversible damage and death. Individuals living with CF undergo extensive daily regime of medications and physiotherapy.
Over recent years we have seen an increase in the life expectancy of children effected by CF. This is due to early intervention and identification of lung infections before symptoms are present - allowing for a better quality of life.
Scott Nestorovic and Jason Morris have a personal reason to put in months of training for the Today for Tomorrow Cycle for Cystic Fibrosis in March and April 2011. Jason’s two year- old son has been diagnosed with Cystic Fibrosis. Scott and Jason are training to ride, over 4,200kms over 31 days with little William as their inspiration. The goal is to raise at least $31,000 in 31 days for the Cystic Fibrosis researchers at AREST – Australian Respiratory Early Surveillance Team based in Perth – and The Children’s Hospital at Westmead in Sydney.
“We will ride an average of 150kms a day which will mean riding between six and 12 hours everyday,” Scott said. Scott and William’s father Jason will ride the entire distance with other cyclists joining them for parts of the journey. To make a donation go to http://www.everydayhero.com.au/cycle_for_cystic_fibrosis or you can donate directly to us via bank transfer. Please contact me on the below details for more information.
This event has been made possible by the amazing sponsorship by Interlink Roads, FRF Sports, Powerade, Bont cycling shoes, Champion Systems Clothing, Winners Nutrition and Sola Sports – as well as the generous support to help us promote the Cycle for CF through the Austereo Network and Channel 9.
At Today for Tomorrow, funds raised go to AREST CF who are world leaders in CF research based here in Perth and to various CF clinics in Perth and Sydney. It is a basic aim to give these children a better quality of life and longevity son one day they will be around to receive a cure.
For more info, and to follow us along the way, visit www.todayfortomorrow.com.au
TODAY FOR TOMORROW’S CYCLE FOR CYSTIC FIBROSIS ITINERARY
Fremantle WA to Campbelltown NSW – 19th March to 20th April 2011
(please note, maps are not the ‘quickest’ way – but the ‘safest’ route – distances we have will vary to maps)
Departure & Destination Km Travelled
DAY 1 – 19 March - http://www.whereis.com/?id=D3BAD943469A
8am leave Bathers Beach Fremantle WA to Northam Caravan Park WA
121km
DAY 2 – 20 March - http://www.whereis.com/?id=D3C33E7C7C96
Northam Caravan Park to Kellerberrin Caravan Park
106km
DAY 3 – 21 March - http://www.whereis.com/?id=D3D1A8149838
Kellerberrin to Southern Cross Caravan Park
166km
DAY 4 – 22 March - http://www.whereis.com/?id=D3F55509DFD1
Southern Cross to Bullabulling bush camp
157km
DAY 5 – 23 March - http://www.whereis.com/?id=D400E59A1E6A
Bullabulling to Kalgoorlie, half rest day
68kms
DAY 6 - 24 March - REST DAY
DAY 7 – 25 March - http://www.whereis.com/?id=D449CAFCA25E
Kalgoorlie to Norseman (Gateway CP)
188km
DAY 8 – 26 March - http://www.whereis.com/?id=D4828A959FD0
Norseman to Ballidonia
192km
DAY 9 – 27 March - http://www.whereis.com/?id=D49A8D625392
Ballidona to Caiguna
182km
DAY 10 – 28 March - http://www.whereis.com/?id=D4C1344A6BDA
Caiguna to Madura
158km
DAY 11 – 29 March - http://www.whereis.com/?id=D4CAC68A55A5
Madura to Mundrabilla
117km
DAY 12 – 30March - http://www.whereis.com/?id=D508E36C5454
Mundrabilla to Border Village South Australia, HALF REST DAY
78km
DAY 13 – 31 March - http://www.whereis.com/?id=D531E6856271
Border Village to Nullarbor Road House
186km
DAY 14: 1 April - http://www.whereis.com/?id=D5456F5C82B1
Nullarbor Road House to Nundroo
145km
DAY 15 – 2 April - http://www.whereis.com/?id=D54E5B6DD823
Nundroo to Ceduna
152km
Day 16, 3 April - REST DAY
DAY 17 – 4 April - http://www.whereis.com/?id=D5578FDEF7EE
Ceduna to Poochera
140km
DAY 18 – 5 April - http://www.whereis.com/?id=D5720D405C4F
Poochera to Kimba
171km
DAY 19 – 6 April - http://www.whereis.com/?id=D577FCD0C0B0
Kimba to Port Augusta
155km
DAY 20 – 7 April - http://www.whereis.com/?id=D5837B2095EF
Port Augusta to Clare
201km
DAY 21 – 8 April - http://www.whereis.com/?id=D58A3A5C6083
Clare to Rowland Flat (Barossa Valley)
115km
Day 20-21, 9 & 10 April - REST DAYS
DAY 22 – 11 April - http://www.whereis.com/?id=D594337D652A
Rowland Flat to Renmark
195km
DAY 23 – 12 April - http://www.whereis.com/?id=D59CAA02C1A7
Renmark to Mildura NSW
143km
DAY 24 – 13 April - http://www.whereis.com/?id=D5A469286362
Mildura to Balranald
158km
DAY 25 – 14 April - http://www.whereis.com/?id=D5AAFD8DB817
Balranald to Hay
132km
DAY 26 – 15 April - http://www.whereis.com/?id=D5B3785B86C4
Hay to Rankin’s Springs
162km
DAY 27 – 16 April - http://www.whereis.com/?id=D5B9F92FE6EB
Rankin’s Springs to West Wyalong
91km
DAY 28 – 17 April - http://www.whereis.com/?id=D5BFB75CECC4
West Wyalong to Cowra
159km
DAY 29 – 18 April - http://www.whereis.com/?id=D5C92235E656
Cowra to Bathurst
108km
DAY 30 – 19 April - http://www.whereis.com/?id=D5D6063CCB50
Bathurst to Katoomba
106km
DAY 31 – 20 April - http://www.whereis.com/?id=D5DF2CC3C168
Katoomba to Campbelltown
101km